Debra

I was a very active person in my mid 50’s, running a business, working out at the gym, and snow skiing every opportunity I could.  Shortly after returning from 10 days of skiing in Colorado I began to feel ill with bouts of low energy.  Doctors told me I had Chronic Fatigue Syndrome.  I read everything about it and went to a specialty clinic treating CFS.  I continued to decline until I was so weak that I had to be in a wheel chair.  Due to neurological problems, I couldn’t read, work on the computer or visit with friends.  I hired a caregiver to take care of me and a manager for my business.  I went from doctor to doctor until 3 years later while laying down through an appointment because I was so weak, the doctor suspected it was Lyme disease.  This was a surprise as I had tested negative for Lyme on the test recommended by the CDC, had had no bull’s eye rash or recollection of being bitten by a tick.  I did work in the outdoors. Specialized testing showed a positive and I started a myriad of treatments for Lyme including a 6 month stint at an out of state clinic with my caregiver, doing very expensive IV infusions. I spent thousands of my retirement savings and the treatments were so hard on my body that I often would shake and shiver with fever and pain.  After six years in a wheel chair I finally recovered with the help of a Lyme literate physician in the Bay area.  I’m now 64, exercising, working and advocating for others suffering this devastating disease. 

Debra

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